Dealing with the diagnosis of a child and everything that comes with it can be overwhelming. We provide information and resources here to help families and caregivers get information and assurance that they are not alone.
For more information and support, we encourage you to visit the CERN Foundation (now part of the National Brain Tumor Foundation). CERN offers comprehensive information on ependymoma, including a guide, a referral service, stories of hope, and more. CERN offers videos for education and awareness on its YouTube channel.
There are two support groups on Facebook:
- EpendyFamilies (EpendyParents): Childhood Ependymoma Brain Tumor Support includes all caregivers and support for the diagnosed child.
- Pediatric Ependymoma Parents Group includes only parents or primary caregivers for the diagnosed child.
Ependymoma Essentials Educational Videos
Relapse and Treatment Options
Families facing relapse must make difficult decisions about the next steps. At some point, many turn to clinical trials to find experimental treatments that offer hope. Our clinical trials support page includes a list that is based on a search of trials available through clinicaltrials.gov.