Bitter:
Today, Colin had a follow-up MRI of his head and cervical spine which had to be performed under anesthesia. Continue reading Bitter + Sweet
Latest Blog Posts
Making Pinocchio a Real Boy
Colin has really enjoyed becoming a boy again, rather than a patient or freak. Continue reading Making Pinocchio a Real Boy
Independence Day!
We sprang Colin from the joint today. Continue reading Independence Day!
Headed Home
On Thursday, we established the planning for Colin’s return home. Continue reading Headed Home
…And Still Planning
Today, we had the meeting with the surgeons and oncologist to discuss our treatment plan for Colin. Continue reading …And Still Planning
Still Planning
Tuesday morning, we had scheduled a meeting with the two neurosurgeons and oncologist, but due to logistical snafus, it never took place. Continue reading Still Planning
New Digs
The weekend was a blur, with several visitors and the excitement of a pending move “upstairs” to the regular pediatric area. Continue reading New Digs
Homeward Bound-ish
On Thursday morning, the neurosurgery team decided to clamp Colin’s drain to see how the intracranial pressure fares. Continue reading Homeward Bound-ish
A Return to Normalcy
Today, Colin had surgery to install the life port. Continue reading A Return to Normalcy
Changes and new experiences
Monday was a whirlwind. Continue reading Changes and new experiences