The weekend has been eventful in many ways, and Colin now hovers at the brink of the next step in his treatment, installation of the shunt and replacement mediport. Continue reading Levy Butt Paste
Latest Blog Posts
Still in the Klink
We have definitely deferred bringing Colin “home” to the Target House until we (read: the medical team) have resolved some of the lingering issues whose causes are not 100% certain. Continue reading Still in the Klink
Kiss Your Baby Now
Life in the hospital always has an underlying tension, as the situation can change dramatically over the course of days or moments. Continue reading Kiss Your Baby Now
A Room With a Poo
Colin finally found a way to get private digs at the hospital, but the unfortunate price is the contraction of a highly contagious infection. Continue reading A Room With a Poo
(little)manscaping
Colin may have a budding career as a Geico caveman, or perhaps a more mundane sideshow act as a wolf boy. Continue reading (little)manscaping
Busy, Busy Boy
Today, Colin was even more alert and had a busy social calendar. Continue reading Busy, Busy Boy
Two Steps Forward…
Today, Colin was definitely less sleepy although still quite congested and having a hard time keeping his oxygen saturation high enough. Continue reading Two Steps Forward…
New Belly Button
On Monday, Colin had surgery to install a G-tube (a second bionic belly button next to the organic original) and perform a fundoplication, which serves to prevent reflux. Continue reading New Belly Button
Our GiantKid
Today, among other things, the family went off to a Ronald McDonald House outing for GiantKids (children with cancer). Continue reading Our GiantKid
Awaiting the G-Tube
On Wednesday, Colin was scheduled to repeat the swallow study, though it was widely thought that he would likely fail. Continue reading Awaiting the G-Tube