Colin has made some big leaps ahead, and we can now really see the strength of his determination. Continue reading The Little Engine
Tag: steroids
First Chemo, Then Home
Colin has an official discharge date: Wednesday. Continue reading First Chemo, Then Home
Up and Away
Colin has done well through the methotrexate. Continue reading Up and Away
Breathing Easy
Colin is in the ICU recovering from the installation of a trach tube. He also has a new MRI done this morning and we will discuss the results of that when Dr. Gajjar is back in town next week. Continue reading Breathing Easy
A Room With a Poo
Colin finally found a way to get private digs at the hospital, but the unfortunate price is the contraction of a highly contagious infection. Continue reading A Room With a Poo
(little)manscaping
Colin may have a budding career as a Geico caveman, or perhaps a more mundane sideshow act as a wolf boy. Continue reading (little)manscaping
New Belly Button
On Monday, Colin had surgery to install a G-tube (a second bionic belly button next to the organic original) and perform a fundoplication, which serves to prevent reflux. Continue reading New Belly Button
MRI Comparison
This evening, Dr. Wisoff sat down and showed us the comparisons of the pre-op and post-op MRIs. Continue reading MRI Comparison
Tuesday Surgery
There is no such thing as certainty. Continue reading Tuesday Surgery
Bound for the Big Apple
Today, we made a big decision regarding Colin’s treatment: we will be taking him to New York City for surgery on Wednesday by Dr. Jeffrey Wisoff of NYU. Continue reading Bound for the Big Apple