Colin is in the ICU recovering from the installation of a trach tube. He also has a new MRI done this morning and we will discuss the results of that when Dr. Gajjar is back in town next week. Continue reading Breathing Easy
Tag: Ronald McDonald House
Graceland
Colin has been at the center of a whirlwind of activity. Continue reading Graceland
You Should See the Other Guy
Colin’s surgery on Monday went swimmingly, a marvel of coordination between the general surgery and neurosurgery teams. Continue reading You Should See the Other Guy
Busy, Busy Boy
Today, Colin was even more alert and had a busy social calendar. Continue reading Busy, Busy Boy
Our GiantKid
Today, among other things, the family went off to a Ronald McDonald House outing for GiantKids (children with cancer). Continue reading Our GiantKid
Awaiting the G-Tube
On Wednesday, Colin was scheduled to repeat the swallow study, though it was widely thought that he would likely fail. Continue reading Awaiting the G-Tube
Signs and Omens
The unlayering of knowledge and understanding that comes with the process of an unfolding medical situation is distressing, frustrating and immutable. Continue reading Signs and Omens
GRRRRR = Colin’s Tummy
Yesterday, Colin was extubated successfully. Continue reading GRRRRR = Colin’s Tummy