Colin has made some big leaps ahead, and we can now really see the strength of his determination. Continue reading The Little Engine
Month: September 2009
Iron Man, not Iron Lungs
Colin has finished the methotrexate infusion that kicked off the second round of chemo. Continue reading Iron Man, not Iron Lungs
Colin, the Blue(s) Man of Memphis
Now for a long and eventful update. Continue reading Colin, the Blue(s) Man of Memphis
Music Therapy Videos
Here are video links to music therapy from NYU and a special moment between Colin and Amy Grant.
NYU Martha :
Video 1- http://www.youtube.com/watch?v=TGCXJGHjz_c
Video 2- http://www.youtube.com/watch?v=LGy4vRASnM0
Amy Grant – Singing the Colin Blues Song:
Home Sweet Home
Our first big news: Aidan completed the Grand Array at school on Wednesday. Continue reading Home Sweet Home
Video of Colin Doing PT
Here are the links to videos of Colin doing PT:
http://www.youtube.com/watch?v=jGz2bUPn7zU
http://www.youtube.com/watch?v=HyhnCYSkI0w
When the child was a child
It walked with its arms swinging,
wanted the brook to be a river,
the river to be a torrent,
and this puddle to be the sea
When the child was a child,
it didn’t know that it was a child,
everything was soulful,
and all souls were one…
–Handke
On the Upswing
Tuesday morning, we found out that Colin’s immune system has already started to rebound. Continue reading On the Upswing
Our Colin of the Contradictions
On Sunday night, Colin spiked a fever and the team immediately started him on antibiotics that they were poised to deliver. Continue reading Our Colin of the Contradictions
Hello, Neutropenia!
Initially, the reluctance to release Colin from the hospital was related to timing and the fact that we had still not worked out the kinks with managing his secretions. Continue reading Hello, Neutropenia!
Putting the Fundo to the Test
After Colin’s sudden swelling on Sunday, Monday started off relatively placid. Continue reading Putting the Fundo to the Test