Two Steps Forward…

Today, Colin was definitely less sleepy although still quite congested and having a hard time keeping his oxygen saturation high enough. Continue reading Two Steps Forward…

New Belly Button

On Monday, Colin had surgery to install a G-tube (a second bionic belly button next to the organic original) and perform a fundoplication, which serves to prevent reflux. Continue reading New Belly Button

Bound for the Big Apple

Today, we made a big decision regarding Colin’s treatment: we will be taking him to New York City for surgery on Wednesday by Dr. Jeffrey Wisoff of NYU. Continue reading Bound for the Big Apple

…And Still Planning

Today, we had the meeting with the surgeons and oncologist to discuss our treatment plan for Colin. Continue reading …And Still Planning

Homeward Bound-ish

On Thursday morning, the neurosurgery team decided to clamp Colin’s drain to see how the intracranial pressure fares. Continue reading Homeward Bound-ish