I realized, after finishing the last very long post, that I didn’t actually go into my originally planned description of the Augusta trip. However, I began writing it in the days leading up to the second on-treatment scan. In the gap between working on it furiously on the plane en route to Memphis and being able to return to it, the scan itself took place. With a lot of anxiety around this milestone, Dr. Gajjar was quite careful in showing me two areas on the spine that might be of potential concern and that he had brought up with the radiologists. These were nothing worrisome, one being clearly a blood vessel (even to me), but he wanted to make sure I saw them before I went on my merry way. With some relief, we started disseminating the news of the all-clear and Colin and I returned to the Tri Delta House to relax before dinner with friends. However, the phone rang in our room and I was met with the familiar voice of Katie, a nurse who had taken care of Colin often when he had inpatient and now works in the brain tumor clinic. We needed to return to the hospital, which meant only one thing.
Continue reading Progress(ion) Report
Category: Radiation
More Good Bad Luck
These past few years, we have done a poor job in updating on Colin and his progress. Though I can’t completely escape guilt on this point, I am happy to report that the reason is that we have all been busy with normal life and that he has been improving steadily. We moved to Ithaca, the boys have been going to the same elementary school together, and we all enjoy living in a neighborhood that is full of kids and friends.
Operation Radiation
Colin’s final radiation treatments found us at Methodist Central, an adult hospital not far from St. Jude in midtown Memphis. Continue reading Operation Radiation
Reset Button
Colin’s second week of radiation was grueling: vomiting, utter fatigue, dangerous aspiration and an unexpected stay in the hospital. Continue reading Reset Button
Ode to Lady Liberty
“Give me your tired, your poor,
Your huddled [brain tissue] yearning to breathe free,
The wretched refuse of your teeming shore.
Send these, the homeless, tempest-tossed to me,
I lift my [high-energy photon] lamp beside the golden door!” Continue reading Ode to Lady Liberty
Sword of Damocles
Colin is always full of surprises and has continued to not disappoint us. Continue reading Sword of Damocles
Prepare the Photon Torpedoes
With the family reunited and Colin enjoying his time out of the hospital, we are getting ready to move on to the next phase of treatment.
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Out of the Nest
Our little fledgling has returned to Target House for good, following his last inpatient stay at St. Jude (barring unexpected events, of course).
Home Sweet St. Jude
Life doesn’t offer real do-overs, but there are times when an experience follows the parallel track of something that has come before. Continue reading Home Sweet St. Jude
The Best Laid Plans…
With surgery set for Wednesday, Monday was a big prep day for Colin, but he demonstrated yet again that our careful planning can be rendered irrelevant by the result of a single blood culture. Continue reading The Best Laid Plans…