Still in the Klink

We have definitely deferred bringing Colin “home” to the Target House until we (read: the medical team) have resolved some of the lingering issues whose causes are not 100% certain. Continue reading Still in the Klink

(little)manscaping

Colin may have a budding career as a Geico caveman, or perhaps a more mundane sideshow act as a wolf boy. Continue reading (little)manscaping

Two Steps Forward…

Today, Colin was definitely less sleepy although still quite congested and having a hard time keeping his oxygen saturation high enough. Continue reading Two Steps Forward…

New Belly Button

On Monday, Colin had surgery to install a G-tube (a second bionic belly button next to the organic original) and perform a fundoplication, which serves to prevent reflux. Continue reading New Belly Button

Our GiantKid

Today, among other things, the family went off to a Ronald McDonald House outing for GiantKids (children with cancer). Continue reading Our GiantKid

Awaiting the G-Tube

On Wednesday, Colin was scheduled to repeat the swallow study, though it was widely thought that he would likely fail. Continue reading Awaiting the G-Tube

Signs and Omens

The unlayering of knowledge and understanding that comes with the process of an unfolding medical situation is distressing, frustrating and immutable. Continue reading Signs and Omens