New Belly Button

On Monday, Colin had surgery to install a G-tube (a second bionic belly button next to the organic original) and perform a fundoplication, which serves to prevent reflux. Continue reading New Belly Button

Awaiting the G-Tube

On Wednesday, Colin was scheduled to repeat the swallow study, though it was widely thought that he would likely fail. Continue reading Awaiting the G-Tube

Bound for the Big Apple

Today, we made a big decision regarding Colin’s treatment: we will be taking him to New York City for surgery on Wednesday by Dr. Jeffrey Wisoff of NYU. Continue reading Bound for the Big Apple

…And Still Planning

Today, we had the meeting with the surgeons and oncologist to discuss our treatment plan for Colin. Continue reading …And Still Planning

Homeward Bound-ish

On Thursday morning, the neurosurgery team decided to clamp Colin’s drain to see how the intracranial pressure fares. Continue reading Homeward Bound-ish