The seasons have flown by in a time lapse blur, flashes of the momentous and the mundane gliding by with relentless speed. It should come as no surprise that Colin has continued to carve his own way in the wilderness, one that nobody did or could have predicted. Following the September news that the tumors had exploded and that his brain was swollen with edema, he continued to improve clinically. The police work seemed like a magical balm, and maybe it was, as the days and weeks slipped into months.
Category: Complications
Same as it Never Was
Clouds ascend like sculptures, backlit by the setting sun. Wispy pink columns stand in dramatic array, the clump on top of one stack embellished with a viciously straight contrail that angles upward like a laser beaming from a cyclopean eye. It is a tiny thing but still audacious enough to pitch a galactic battle against an unseen enemy. The day closes over the Mississippi, with stormheads threatening their bounty of rain from the south. Colin and I have left the gentle wash of music and companionship of old friends on Mud Island, a sanctuary of gentile life only a stone’s throw from the urban grittiness that awaits patiently on the east shore of the mighty river.
Continue reading Same as it Never Was
Counting the Years
After the absentee winter thawed into spring, Colin returned to Memphis for his four-month check-up. This visit marked two years from the end of radiation and a juncture I hadn’t dared contemplate when we were still at St. Jude. We are also nearing his fifth birthday, simultaneously the third anniversary of his diagnosis. These milestones have snuck up on us, with the pleasantly mundane realities of daily life overshadowing the gravitas that cancer tends to impose. Continue reading Counting the Years
Indestructible
Before launching into the latest long-overdue update, I want to post information about the 2011 St. Jude Give Thanks. Walk that is taking place across the country this weekend. We are going to New York City on Saturday, November 19, to support the hospital in a walk across the Brooklyn Bridge. If anybody can join us or participate in one of 80 cities across the country, we encourage you to do so. Also, please consider a donation to St. Jude (our fundraising page). Not only do we know from personal experience what an amazing place it is, but independent research demonstrates that St. Jude is a quality charity. The hospital received a top rating on Charity Navigator because it has proven that dollars donated equate to dollars spent helping the kids. Now back to our regularly scheduled programming…
After getting news of another stable scan at the end of June, we returned home to start off a busy summer. Continue reading Indestructible
Summer Kick-Started with a Scan
Even on the cusp of summer, Memphis is unforgivingly hot, but the weather is nearly irrelevant when you’re back for check-ups at St. Jude, which we were at the end of June. Continue reading Summer Kick-Started with a Scan
Full Circle
Colin returned home, nearly a year from the completion of radiation and two months short of his fourth birthday, with a good scan and no trach. Continue reading Full Circle
Put Me in, Coach
As Colin’s trajectory moves unevenly but steadily upward, we have also been taking him out into the world to finally do what he could not a year ago. Continue reading Put Me in, Coach
Survivor: Target House
There is no immunity challenge, and Jeff Probst doesn’t sit us around a campfire to discuss who is next to go, but living here is beginning to feel like a warped version of the Survivor reality show. Continue reading Survivor: Target House
Happy Mother’s Day
Mother’s Day is billed as an opportunity for fathers and children to express their gratitude for the other 364 days a year that mothers devote to their families. Continue reading Happy Mother’s Day
Winding Down*
Our family’s time at St. Jude is drawing to a close. Continue reading Winding Down*