Colin may have a budding career as a Geico caveman, or perhaps a more mundane sideshow act as a wolf boy. Continue reading (little)manscaping
Category: Understanding Hospitals
Busy, Busy Boy
Today, Colin was even more alert and had a busy social calendar. Continue reading Busy, Busy Boy
Two Steps Forward…
Today, Colin was definitely less sleepy although still quite congested and having a hard time keeping his oxygen saturation high enough. Continue reading Two Steps Forward…
Awaiting the G-Tube
On Wednesday, Colin was scheduled to repeat the swallow study, though it was widely thought that he would likely fail. Continue reading Awaiting the G-Tube
Signs and Omens
The unlayering of knowledge and understanding that comes with the process of an unfolding medical situation is distressing, frustrating and immutable. Continue reading Signs and Omens
MRI Comparison
This evening, Dr. Wisoff sat down and showed us the comparisons of the pre-op and post-op MRIs. Continue reading MRI Comparison
Tuesday Surgery
There is no such thing as certainty. Continue reading Tuesday Surgery
Bound for the Big Apple
Today, we made a big decision regarding Colin’s treatment: we will be taking him to New York City for surgery on Wednesday by Dr. Jeffrey Wisoff of NYU. Continue reading Bound for the Big Apple
Making Pinocchio a Real Boy
Colin has really enjoyed becoming a boy again, rather than a patient or freak. Continue reading Making Pinocchio a Real Boy